Home » CPSsufferer » Julie Haupt

Julie Haupt

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 110 other followers

Julie Haupt

My name is Julie, I’m 33, and I’ve had Central Pain for 6 years. I have severe burning and cold, unrelenting pain throughout both sides of my body. The worst part is my hands. It feels like i’m on fire and also freezing cold.

I had a stroke at 26, a blood clot in my cerebellum, right in the middle of the back of my head, by my spine. Four months later the tingling in my hands started, I also had tightness in my arms. The pain changed to a burning, spread everywhere and worsened. The only place i don’t feel it very much is my lower back and buttocks.

The only thing that has helped me so far is opiates, I’ve tried every non-narcotic. I can’t be on them forever so i’m hoping to get a spinal cord stimulator or something else. Everyday is a struggle not to go crazy, I try to stay distracted with tv and search for help and solutions.

Thank you for this group. It’s nice to hear other peoples experiences and what they’ve tried. It’s nice not to be alone, although I’d never wish this on any person or animal. No one should live like this and I hope there’s a breakthrough soon. Thank you for giving me a voice and help.

About these ads


  1. fenfool says:

    I just found this site, your story is very familiar…I had a stroke at 35, no idea what happened, they said there was a dissection of the pre-vertebral artery somehow…my pain is a little different, it;s in my entire left side and the right side of my head, I know the burning very well. I can’t feel temperature in my left, when I get too much pressure or extreme temperature there, I get a sharp, stabbing pain in my face. Rain can feel like daggers if I’m not prepared. Opiates are the only thing that help me too…I hope for a way off of them, but nothing else has helped. Thanks for sharing your story, I hope you find some relief!


  2. william russell says:

    Went in for day surgery on a right shoulder rotator cuff tear woke up with my brain torched.Right hemispherical stroke in 2007.Thought rehab and leaning how to walk again was huge.The tingly bee stings were one thing but the constant pain in my foot and hand on the left side is a challenge daily.Have tried several different drugs no positive results.this really does suck that almost 6 years post stroke.Iam 52 don’t want to start smoking pot just for relief.Have torn up my body due to sports and other stuff rehab is the key hope someday we can helpall of us that sufferfrom this nastydisorder great to here about others my family and others just don’t understand

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s


Get every new post delivered to your Inbox.

Join 110 other followers

%d bloggers like this: