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Hi, I’m Karen Davis, wife of CPS sufferer, mother of two, dental hygienist and secretary/treasurer of the CPS Foundation. My husband Scott was diagnosed almost ﬁve years ago, it was the result of a brain biopsy of what looked like a cyst/tumor near the thalamus. The biopsy came back benign but our lives were changed forever.
Scott was Mr. mountain man! He loved anything and everything outdoors, from skiing to backpacking you name it he did it. As a couple, we shared this love and went on many fun trips together, he even proposed on a ski trip. CPS has taken this from him and so much more. His life has to revolve around controlling his symptoms the best he can. He has to take medication every six hours, see’s an occupational therapist once a week and has MANY different doctors and appointments. It’s very hard to see the one you love in constant pain. I know he’s not the father he imagined himself to be but I try to think of it this way, maybe rather than horsing around like I know he wanted to, he’s teaching us more important values like resilience and strength of character.
For three and a half years I thought we were all alone. We went to the experts in the ﬁeld and were essentially told that Scott just needed to keep taking his meds, keep trying to work and trudge ahead. While that is ﬁne advice it didn’t give us any help on an emotional level. It was then that we found Louise Mowder’s blog, Scott ﬁnally convinced me to read it, and I literally could not believe there was someone who was using his exact same words! I immediately joined the FB group and was again amazed at how many people had my husband’s condition.
I know how hard this disease can be on the family. It is to promote public awareness and support for CPS sufferers and their families that I joined the CPSF. It is because I want you to know, YOU ARE NOT ALONE!