Comments for Central Pain Syndrome Foundation http://centralpainsyndromefoundation.com You Are Not Alone Thu, 07 Jan 2016 23:15:29 +0000 hourly 1 http://wordpress.com/ Comment on The Art of CPS Survivors by lizaschmidt http://centralpainsyndromefoundation.com/writings-of-cps-survivors/comment-page-1/#comment-37941 Thu, 07 Jan 2016 23:15:29 +0000 http://centralpainsyndromefoundation.com/?page_id=83#comment-37941 When you look at me, what do you see?
It’s as if I lost parts of myself along the way. I sway in the comfort of friends
Searching for a place to lay my head.
Do I appear as a jester attempting to fool my way through life? Or a princess that needs rescuing? I am neither.
Pulled below the layers of skin burning me alive, is a fierce heart. I will take everyday with a confident strut, until I begin to choke. I am bleeding inside. Fighting a monster that swears to take my dignity to an early grave.
My syndrome does not own or possess me. I am the queen of my mortality. I will live my days until age renders me lifeless, but still kicking.
Samantha Montgomery

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Comment on CPS Sufferers and Supporters by patti http://centralpainsyndromefoundation.com/cps-sufferers-and-supporters/comment-page-1/#comment-37931 Wed, 06 Jan 2016 16:22:02 +0000 http://centralpainsyndromefoundation.com/?page_id=482#comment-37931 I’m so happy my story was published as of today! :)
We desperately need more awareness…
http://www.rarediseaseday.org/stories/5270

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Comment on CPS Sufferers and Supporters by kitty mom http://centralpainsyndromefoundation.com/cps-sufferers-and-supporters/comment-page-1/#comment-37839 Fri, 18 Dec 2015 16:28:53 +0000 http://centralpainsyndromefoundation.com/?page_id=482#comment-37839 Anyone have success on Tegretol???
Only on it for 1 1/2 wks and it’s increasing the burn and prickling. :(
Just want to scream it’s so bad!

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Comment on Ursula Pegg: Poet of CPS by Kacey Breske http://centralpainsyndromefoundation.com/ursula-pegg-poet-of-cps/comment-page-1/#comment-37804 Thu, 10 Dec 2015 08:02:31 +0000 http://centralpainsyndromefoundation.wordpress.com/?page_id=93#comment-37804 It’s hard to find experienced people in this particular subject, however, you sound like you know what you’re talking about! Thanks

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Comment on Information for Medical Providers by Norman http://centralpainsyndromefoundation.com/information-for-medical-professionals/comment-page-2/#comment-37787 Tue, 08 Dec 2015 19:53:40 +0000 http://centralpainsyndromefoundation.wordpress.com/?page_id=89#comment-37787 I have had CPS since a hemorrhagic stroke in Feb. of 2014. i have taken lots of drugs, currently i am taking Lyrica and amitryptiline. Neither of these work. I know this is one of the syndromes the medical field does not know much about and i don’t expect a miracle, I would just like a bit of relief. it is difficult to work. i try to be as active as i can, that seems to help take the edge off, but the syndrome is often worse after exercise. I am pressing ahead as best I can.

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Comment on Iolanda: My Pain Story by Marylyn http://centralpainsyndromefoundation.com/2012/05/17/iolanda/comment-page-1/#comment-37680 Mon, 30 Nov 2015 18:58:15 +0000 http://centralpainsyndromefoundation.com/?p=531#comment-37680 The forex trading marketplace as a Forex Gemini Code Technique
complete, there are a quantity of key banks and financial institutions.

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Comment on About the CPS Foundation by Brian http://centralpainsyndromefoundation.com/about/comment-page-1/#comment-37544 Sun, 22 Nov 2015 18:58:51 +0000 http://centralpainsyndromefoundation.wordpress.com/?page_id=2#comment-37544 Once I found the right neurologist, he diagnosed me in a couple hours. He got my medical history and did muscle and nerve tests. Mine was a little different because mine was from a head injury. As long as you can find a doctor that undersands CPS.

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Comment on About the CPS Foundation by Camille http://centralpainsyndromefoundation.com/about/comment-page-1/#comment-37543 Sun, 22 Nov 2015 18:48:36 +0000 http://centralpainsyndromefoundation.wordpress.com/?page_id=2#comment-37543 Hi all, it looks like it’s been a while since anyone has posted here, so I am hoping someone will see this and answer me.

How long did it take you to get diagnosed and what kind of doctor diagnosed you?

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Comment on Meet the People of the CPS Foundation by randallbrown65@gmail.com http://centralpainsyndromefoundation.com/meet-the-people-of-the-cps-foundation/comment-page-2/#comment-37536 Sat, 21 Nov 2015 16:07:23 +0000 http://centralpainsyndromefoundation.wordpress.com/?page_id=210#comment-37536 I am newly diagnosed and looking for other people to talk to about this issue. It has been a 15 year journey to get a diagnosis.

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Comment on Information for Medical Providers by Madeline Rodrigues http://centralpainsyndromefoundation.com/information-for-medical-professionals/comment-page-2/#comment-37535 Sat, 21 Nov 2015 14:59:53 +0000 http://centralpainsyndromefoundation.wordpress.com/?page_id=89#comment-37535 Hi I have been on a long long journey this year going from three neurologists neuropshchatrists psychologists and psychiatrists. I have the burning pain that no one seems to understand. It started with a patch on my back last year and has spread all over me. I haven’t had an injury but have had a lot of emotional and stressful situations and it seems this is the result. I went to a pain clinic who said that my nervous system has got stuck on red alert I.e became sensitised. I am taking 40mgs of ampitripilyne and this really helps. However I am still in the mist loneliest place I have ever been as no one except other sufferers knows what this nightmare is like. Please please could anyone respond with any piece of hope or comfort or even chat as to speak to someone who has this awful condition so that I don’t feel so alone. Thanks.

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