Home » Meet the People of the CPS Foundation

Meet the People of the CPS Foundation

CPS Foundation Board Members:

CPS Foundation Supporters:

  • Mandy Dumins, Graphic Artist

51 Comments

  1. Brian says:

    Looking for ideas!!!!!!!!!!!!!

    My CPS started a little over a year ago. Here is the list of pain I go through on a daily basis:

    -Skin burning – from my head to my feet (average day is a very bad sun burn – bad day is roasting in a oven)
    -Electric shocks – from what feels like 120v to being hit with a stun gun
    -Spams – from my neck to my calves ( also have hemifacial spasms, they don’t hurt until after they stop. Then it feels like being kicked in the face by a horse)
    -Joint pain – That’s the wonderful knife being stabbed in to each joint
    -Bone pain – feels like my bones are being crushed (the pressure builds and builds)
    -Freezing – my feet start freezing which makes them burn and spasm
    -Nerve pain – I can feel each nerve coming out of my spine as they turn to fire (those days I can’t be touched or touch anything because of the pain levels)
    -Feet pain – besides my feet burning, every step I take is like walking on broken feet

    Now the reason I need help and ideas:

    -Temp change cause pain
    cold causes spams
    heat causes burning
    -Now I have a drug sensitivity
    Can’t take anything with the word anti attached to it. It either makes my pain and burning 100x worse or it puts my in anaphylactic shock.
    -Drugs I can take
    Muscle relaxers (I’m on as much Baclofen and Flexarel as they will give me) everything else will knocks me out
    Narcotics – Butrans patch 10mcg on bad weeks, 15mcg on hard weeks, 20mcg on tough weeks
    And I do use marijuana (I live in Georgia and it isn’t legal yet)
    -My Doctors don’t want to put in a pump for either Baclofen or Morphine. They don’t think it will do me any good. I don’t want to be in a drug coma the rest of my life.
    -Trigger point injection, dry needling, nerve blocks, epidurals, acupuncture, chiropractics, massage, have all been tried and nothing lasts for more than 10-15 minutes.

    I do meditate when things get really bad. But for the most part I just keep my mind focused on my work and kids. That helps on the bad and hard days. Nothing works on the tough days.

    If anyone has any Ideas or even doctors I can go see PLEASE HELP. I know I’ve only been at this for a year, but the pain grows worse by the week.
    Thank you,
    Brian

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