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Lisa Budzinski

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Lisa Budzinsky
Lisa Budzinski is Vice President of the Central Pain Syndrome Foundation.

Please read Lisa Budzinski’s book “At the End of the Day.”

What does anyone need at the end of any day? Peace, security, purpose and love. These elements and more are discussed with the utmost honesty and vulnerability. This book is intentionally written in a different prose to make you feel as if you are sitting and having a one on one discussion, friend to friend. Providing encouragement and giving direction to inspire the reader to discover the power that can bring hope and fulfillment At the End of the Day.

My CPS journey started with a stroke in the thalamus at the age of 37 (I am now 47).  Though my stroke occurred 9/2002, the severe symptoms did not show up until January 1st, 2004.

Since my family doctor and oncologist could not pinpoint why I was having such horrid pain all throughout my body, I went to the Mayo Clinic in Jacksonville, Florida.  That is where my stroke was pin pointed to the thalamus but after seeing several specialists there, still no diagnosis.

In the span of 7 years I saw 3 Rheumatologists, 3 Neurologists and 3 Endocrinologists.  During this time I also researched all that I could find on the symptoms I was suffering and found that CPS/Thalamic Pain fit very well and when I joined the CPS Alliance forum online, I finally knew what was happening to me was REAL and there were many others experiencing the same 24/7 pain and symptoms I was.

This horrible disease destroyed what was of my “old life”.  Such as my career that I had worked so hard at building up for over 20 years.  After CPS forced me to retire/disabled, we lost our home of 14 years and without health care, used up all of our savings for doctor appointments and prescription medications.  As well as relying on credit cards just to buy gas and groceries.

During that time and up to now, I have seen a great need for knowledge and awareness of this disease that so few know about.  Only through knowledge will others suffering with CPS be helped mentally and physically.

There is NO cure and any combination of medications that can be found to be helpful cannot and will not take away the pain and symptoms completely thus forcing those of us with CPS to figure out how to live and manage a life with dreadful pain and symptoms every hour of every day.


2 Comments

  1. Kim Kucherer says:

    As a PCS Sufferer,myself. I definitely hear you. We simply have to manage one minute at a time. Unfortunately, PCS stole my entire body. Happiness has been the best medicine for me. God.

  2. Ellen Enkosky says:

    I am a suffer of Thalamic Pain Syndrome. I have this disease since a Brain tumor surgery in 1997. It has affected the entire left side of my body. I am in constant pain 24/7 for the last 19 years on September 11th,2016. My Physician, bless his heart, has tried every drug made to man, and is finally gone to Morphine Sulfate Extended Release Q 8 hours which is finallly giving some relief. I have also had a Deep Brain Stimulator place three years after the DX of TPS. That really help alot. Got me out of bed. Until then I was not able to wear clothes or even sleep with sheets. I have the most wonderful husband in the world that has gotten through the past 19 years, and the best pain management Physician in the system. The LORD had been good to me and without HIM I would not be, as far as, I am. To all of you that have TPS or CPS, hang in there. The LORD says we are Saint’s and our pain is a way of dealing with his word. Be happy and keep smiling. Life is very short. Enjoy the time you have left. Make it count. Every time I start to feel sorry for myself, I think of someone else who is worse off than I.

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