My CPS is caused by hemorrhagic stroke on oct. 3 1994. CPS began from the beginning but in subtle ways. ie… ballooning feeling of knee… general fuzziness of affected side. I look back on what I thought was stroke effects at the time that i thought all strokees encountered but 18 years later i know to be CPS effects and not just stroke affects.
I would also like to add that it was in 1997 i first got online and noticed that there was not anyone specifically paying attention to post stroke nerve pain. There were groups for aphasia and other stroke affects. I began to gather all those strokees together who seemed to need support and information about what Central Pain Syndrome (only one of the many terms it was called back then.) Then in 2000 we expanded and became an alliance of for whomever ended up with CPS from all other conditions. CPS is not rare as it was thought in those days. We all just needed to get on the same page of calling it by the same term…..Central Pain Syndrome.
I am so very proud of those working so hard on continuing the fight to bring CPS out to the world. Bless you on your journey.