Introduction Have you ever felt mentally fatigued, struggling to concentrate and accomplish your goals? In today’s fast-paced world, the ability to maintain focus and mental clarity is crucial for success and overall well-being. With the demands of modern life constantly increasing and in a world that moves at a relentless pace, it’s easy to overlook […]
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Central Pain Syndrome Foundation
Central Pain Syndrome (CPS) is
a neurological disorder consisting of agonizing pain signals of many differing types at once:
- Burning
- Freezing
- Shocking
- Aching
- Crushing
- Spasticity
It has been characterized as the worst pain known to man.
It is caused by damage to or injury of the Central Nervous System (CNS), which includes the brain, brainstem and spinal cord; its causes include but are not limited to:
- Stroke
- MS
- Epilepsy
- Head & spinal cord injuries
- Aneurysms
- Tumors
- Infections
It is estimated that close to 3 million people in the U.S. suffer from CPS. It is aggressive, never ending and disabling, making normal life immensely painful and incredibly difficult.
The medications and treatments used to fight it are very limited and highly ineffective. There is presently no cure.
The Central Pain Syndrome Foundation gained 501c3 status in 2015, making your donations tax deductible.
Help us work toward our mission:
To increase understanding of Central Pain Syndrome, its symptoms, causes, and treatments;
To help ensure quality medical care for those suffering from CPS;
To energize science to find a better treatments, and eventually a cure for the disease;
To improve the lives of patients, their caregivers and families;
To create a network of people dedicated to achieving these goals.
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JPBosku says
Found this page while reading up on central pain after my uncle's stroke last year. The way you list it out (burning, freezing, shocking, all at the same time) finally explains what he has been trying to tell us for months. Nice to see the foundation has 501c3 status too, I'll look into donating this month.
Margaret Holloway says
My husband has MS and developed CPS about four years in. People think "the worst pain known to man" is an exaggeration. It isn't. Thank you for putting caregivers and families in your mission, we get forgotten a lot.
Daniel Okafor says
Six years since my spinal cord injury and I still meet doctors who have never heard of CPS. I printed this page and brought it to my new GP. Simple, but it actually helped the conversation.
Priya Raman says
Nursing student here. We covered neuropathic pain in class but barely touched on CNS causes like aneurysms and tumors. This was a clear overview, bookmarking it for revision.
JP Bosku says
Really appreciate that this page is honest about where treatment stands right now. A lot of sites promise a quick fix, but this one just says there is no cure yet and explains why research matters. That honesty makes me trust the rest of the info here.
Tom Becker says
Came for the Mind Lab Pro vs Adderall article, stayed and read about CPS. Didn't know this foundation was behind the site. Good comparison btw, I ended up asking my doctor before trying anything which I think is the right call.
Lucia Fernandes says
Is the network you mention only in the US? I'm in Portugal caring for my mother after her thalamic stroke and there is almost nothing here. Would love to connect with other families.
Kevin Tran says
Close to 3 million people in the US alone? That number surprised me. You'd think something this common would get way more research money.
Sarah Whitfield says
The Qualia Mind vs Noocube piece was useful. I liked that it showed the downsides of both instead of just pushing one. Please keep the comparisons coming.
jpbosku says
Shared this with a friend whose mum has MS. She had never heard the term central pain syndrome before, even after years of appointments. Just having a name for it seemed to help her a lot.
Ahmad Faizal says
My father had a brainstem stroke two years ago and the pain started months later, which confused everyone. Shared this with my siblings so they understand it's a real condition and not just "in his head".
Rebecca Lin says
"Energize science to find better treatments" is exactly what's needed. Current meds barely take the edge off for most people I know with CPS. Hoping to see more research updates posted here.